Unveiling the Hidden Challenges: A Systematic Review of Self-Identified Caregiver Support Needs for Older Adults in Canada
Sheila A. Boamah, Hoda Herati, Farzana Akter
et al.
ObjectiveIn Canada, over 7.8 million individuals provide care, with nearly one-quarter aged 65 or older. As essential partners in aging, caregivers bridge formal care systems and the broader care economy. With caregiving demands expected to double over the next 30 years, identifying and addressing caregivers’ evolving support needs is critical to sustaining compassionate, connected care. This systematic review aims to document caregivers’ self-identified support needs in delivering quality care.MethodsA systematic search of bibliographic databases and grey literature was conducted in line with PRISMA guidelines and supplemented by reference mining. Eligible studies were peer-reviewed, published in English between 2020 and 2025; reviews and grey literature were excluded. Selection was managed using Covidence, and methodological quality was assessed independent by two reviewers utilizing Joanna Briggs Institute tools.ResultsOf 3,629 records, 83 studies were included: 59 qualitative, 17 quantitative, and 7 mixed-methods. Five key themes with twelve sub-themes emerged, reflecting caregivers’ needs related to system navigation, inclusive technologies, coordinated care system, emotional and practical, and financial/workplace resources.ConclusionCaregivers’ insights highlight priority areas to inform caregiver-centred policies, services, and research that enhance caregiver wellbeing and care quality for older adults.
Public aspects of medicine
Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes
Anne Killett, Kerry Micklewright, Rachael Carroll
et al.
ABSTRACT Introduction Information on care home residents in England is captured in numerous data sets (care home records, General Practitioner records, community nursing, etc.) but little of this information is currently analysed in a way that is useful for care providers, current or future residents and families or that realises the potential of data to enhance care provision. The DACHA study aimed to develop and test a minimum data set (MDS) which would bring together data that is useful to support and improve care and facilitate research. It is that utility that underscores the importance of meaningful public involvement (PI) with the range of groups of people affected. This paper analyses the involvement of family members of care home residents and care home staff through a PI Panel. Objectives The objective for the PI activities was to consistently bring the knowledge and perspectives of family members and care home staff to influence the ongoing design and conduct of the DACHA study. Methods The bespoke methods of PI included a dedicated PI team and a PI Panel of public contributors. Meetings were recorded and minutes agreed, resulting actions were tracked and reflections on the PI recorded. A democratic, social relations approach was used to frame the analysis. Results A PI panel met 17 times. All meetings included both family members and care home staff. Analysis of the records and reflections developed the following themes about the operation of the PI: deepened understanding of the data environment in care homes; Influence on the pilot MDS; aiming for best research practices with care homes; personal/professional development for PI members; expectations of the project. Learning points for future research projects are developed. Conclusions PI shaped the design and conduct of the DACHA study, grounding it in the needs and perspectives of people using and providing social care. Data research has a huge responsibility to accurately incorporate relevant public perspectives. There is an implicit assumption that records and data are objective and ‘speak for themselves’ however there can be unintended consequences from introduction of new data requirements in practice. Patient or Public Contribution Public contributors to this manuscript include family members of older people living in care homes and staff of care homes. The wider study also involved as the public, older people living in care homes. Public contributors helped develop the project, contributed throughout the conduct of the study and some chose to be involved in preparing this manuscript.
Medicine (General), Public aspects of medicine
Barriers and Facilitators to Patient Education Among Nurses in Multicultural Hospital Settings: A Cross-Sectional Study
Hawazen Omar Rawas, Jennifer de Beer, Siti Awa Abu Bakar
et al.
<b>Background:</b> Patient education (PE) is an essential component of quality healthcare and chronic disease management. However, effective implementation often faces patient-, nurse-, and organization-related barriers. This is particularly relevant in multicultural healthcare settings such as Saudi Arabia, where a highly diverse nursing workforce may influence PE practices. <b>Aim:</b> To examine the barriers and facilitators influencing patient education practices among nurses working in multiple hospitals in Saudi Arabia. <b>Methods:</b> A descriptive cross-sectional study was conducted among 289 registered nurses recruited through convenience sampling from various hospitals in Saudi Arabia. Data were collected using a validated self-administered questionnaire consisting of demographic items and structured scales assessing PE barriers and facilitators. Descriptive statistics were used to analyze the data. <b>Results:</b> Language differences (64.3%) and cultural barriers (59.2%) were the most commonly reported patient-related obstacles. Among nurse-related barriers, staff shortages (72.4%), heavy workload (72.0%), and time constraints (59.9%) were prominent. Organizational barriers included limited educational resources (39.4%) and unsupportive environments (35.6%). Key facilitators identified by nurses included availability of policies and procedures (63.6%), provision of PE training (63.7%), and integration of PE into clinical workflow and nurse appraisals. <b>Conclusions:</b> Despite strong professional support for PE, multiple barriers hinder its implementation in Saudi hospitals. Addressing these challenges requires institutional strategies such as workforce reinforcement, policy integration, and resource allocation. Future efforts should also include integrating patient perspectives, developing culturally tailored education resources, and evaluating the impact of targeted interventions to strengthen PE delivery in diverse hospital settings.
Influencing Factor on School-Age Children’s Holistic Health Care Who Using Online Media by Working-Age Parents in Northeast Thailand
Atchariya Wonginchan, Juraporn Tangpukdee, Suphasak Wonginchan
et al.
Background. Thailand tends to have more access to online media. In 2020, the northeastern region had the highest usage rate. Especially school-age children have the highest usage rate. If misused for a long time, the consequences can adversely affect health in many aspects. Their parents should closely supervise and monitor them for this health problem. However, parents have limitations in caring because they have to work a lot. The aim was to study factors that influence working-age parents in holistic health care (HHC) of school-age children using online media in northeast Thailand. Materials and Methods. This research was a descriptive study, with a sample of parent amount 222. The questionnaire performed an item-objective congruence (IOC) = 0.60–1.00, the content validity index (CVI) = 0.90, and the Cronbach’s alpha coefficient was 0.93. The data collected then include the characteristics, use of online media, health problems, and health care. Finally, data were analyzed using descriptive statistics, frequency, percentage, standard deviation, and multiple regressions. Result. The results of the study are factors that influenced HHC with statistical significance (p≤.001) including the child’s gender, the child’s age, the child’s class, the type of internet, activities, the device, and the device owner. In addition, it was holistic health problems of school-age children such as physical, emotional, social, and intellectual. Importantly, these could explain the variation for HHC of 21.2% (adjusted R2 = 0.212), and the standard error in the model estimation was 25.06 (SEE = 25.06). Conclusion. Factors that influence school-age children’s health care are beneficial to preventing and solving health problems by using online media. Parents or health care professionals can use it as a guide to develop more effective health care strategies and policies. Ultimately, it will help to promote better health for children in an ever-changing digital world.
Public aspects of medicine
Constructing the concept of healthy ageing and examining its association with loneliness in older adults
Ivy Yan Zhao, Mu-Hsing Ho, Stefanos Tyrovolas
et al.
Abstract Background World Health Organization (WHO) has defined healthy ageing by highlighting five functional ability domains to (meet basic needs, make decisions, be mobile, build and maintain relationships, and contribute to society), which also emphasized the importance of addressing loneliness as priorities within United Nations Decade of Healthy Ageing initiative. However, the level and determinants of healthy ageing and its association with loneliness are rarely examined. This study aimed to construct a healthy ageing index to verify the WHO healthy ageing framework, measure five domains of functional ability of older adults and examine the relationship between functional ability domains and loneliness. Methods A total of 10,746 older adults from the 2018 China Health and Retirement Longitudinal Study (CHARLS) were included. A healthy ageing index ranging from 0 to 17 was constructed using 17 components related to functional ability domains. Univariate and multivariate logistic regression analyses were utilized to determine the association between loneliness and healthy ageing. The STROBE guidelines with the RECORD statement for observational studies using routinely collected health data were observed. Results The factor analysis verified the five functional ability domains for healthy ageing. After adjusting for confounders, being mobile, building and maintaining relationships, and learning, growing and making decisions were significantly associated with lesser loneliness among participants. Conclusions The healthy ageing index of this study can be utilized and further modified with respect to large-scale research with relevant healthy ageing topics. Our findings will support healthcare professionals to provide patient-centered care when identifying their comprehensive abilities and needs.
Nursing of an elderly patient with constipation complicated with stage IV pressure injuries (1例老年便秘患者伴IV期压力性损伤的护理体会)
LYU Yang (吕阳), WANG Yanhua (王艳华)
This article summarized the treatment and nursing measures of an elderly patient with constipation and stage IV pressure injuries. Comprehensive treatment and nursing including wound debridement, combination of dressing change, disinfection and medication, diet guidance and psychological care were carried out to improve the wound healing and relieve the pain. (本文总结了1例老年便秘患者伴IV期压力性损伤的治疗护理措施。入院后根据患者创面情况进行清创, 联合敷料、消毒、药物多频次换药, 并配合饮食指导、心理护理等干预, 促进伤口愈合, 减轻患者痛苦, 提高生活质量。)
Development of the Prevent for Work Questionnaire (P4Wq) for the assessment of musculoskeletal risk factors in the workplace: part 2—pilot study for questionnaire development and validation
Thorvaldur Skuli Palsson, Morten Høgh, Pablo Herrero
et al.
Objective The aim of this study was to develop a multifactorial, self-report questionnaire: Prevent for Work Questionnaire (P4Wq). The questionnaire is intended for screening for risk factors in work-related musculoskeletal disorders (WMSDs).Design Data were collected from otherwise healthy workers employed in three service areas at a specialist hospital in Italy: healthcare, administration and ancillary services.Setting and participants In all, 115 participants were enrolled (67% women; average age 41.5±9.94 years). The content of the tool for WMSDs was derived from three participation rounds of analysis involving a select group of experts who identified the questionnaire domains and items. Participants responded to 89 items in addition to the EuroQol 5 Dimensions Questionnaire (EQ-5D-5L), Fear-Avoidance Beliefs Questionnaire (FABq) and Oswestry Disability Index (ODI). The proportion of missing data and the distribution of responses were analysed for each item. Items with a discrimination index >0.40 and an interitem correlation <0.80 were retained. Factor analysis was performed using the VARIMAX rotation method, factor extraction, and identification, assignment of items to subscales, and assignment of scores to items. Internal consistency, reliability, construct validity and face validity were also assessed.Results A total of 52 items were included in the factor analysis and four subscales identified: Physical Stress Subscore (six items); Mental Stress Subscore (six items); Job Satisfaction Subscore (four items) and Kinesiophobia/Catastrophizing Subscore (four items). The items in the final questionnaire version had a factor loading >0.7. The questionnaire consisted of 20 items with good internal consistency (Cronbach’s alpha 0.81–0.91), reliability (weighted kappa coefficient 0.617–1.00), good construct validity (EQ-5D-5L, r=−0.549, p<0.001; ODI, r=0.549, p<0.001; FABq work, r=0.688, p<0.001) and satisfactory face validity (universal validity index 96.04%).Conclusion The P4Wq is a 20-item, multifactorial self-report risk assessment questionnaire. It may provide a useful tool for screening for WMSDs by specifically addressing back disorders. It investigates risks for individual workers and may inform educational programmes and preventive strategies tailored to a worker’s needs.Trial registration number NCT04192604
PERILAKU SELF CARE MANAGEMENT PENDERITA HIPERTENSI: STUDI KUALITATIF
Salami
Hipertensi membutuhkan manajemen penyakit jangka panjang oleh penderitanya.
Manajemen perawatan diri (self care management) ini berhubungan erat dengan
perilaku penderita. Kegagalan melakukan self care akan berdampak terhadap terjadinya
komplikasi yang mematikan. Penelitian ini bertujuan untuk mengeksplorasi perilaku
self care manajement penderita hipertensi di Puskesmas Kota Bandung. Manfaat
penelitian ini sebagai data dasar untuk petugas kesehatan dan pengambil kebijakan
terkait perspektif pasien hipertensi dalam pengelolaan penyakitnya. Metode penelitian
yang digunakan adalah deskriptif kualitatif. Partisipan pada penelitian berjumlah
tujuh orang sesuai dengan kriteria inklusi dan eksklusi. Pemilihan partisipan dengan
menggunakan Teknik Purposive Sampling. Pengumpulan data berdasarkan wawancara
terstruktur menggunakan pedoman wawancara. Hasil wawancara dibuat verbatim. Data
dianalisis dengan Model Miles Huberman. Untuk memenuhi prinsip keandalan data
penelitian (Trustworthiness) dilakukan credibility, dependeability, confirmability, dan
transferability. Hasil penelitian didapatkan tiga tema yaitu: pengobatan yang dilakukan,
upaya self care management, dan persepsi terhadap penyakit. Petugas kesehatan
disarankan untuk memberikan intervensi yang tepat pada penderita hipertensi terkait
persepsi penyakit, terutama tentang efek samping pengobatan. Dengan ersepsi yang
tepat diharapkan penderita menjadi lebih patuh minum obat
Relatives’ experiences with abuse and neglect in Norwegian nursing homes. A qualitative study
Susan Saga, Lene Elisabeth Blekken, Sigrid Nakrem
et al.
Abstract Background Elder abuse in nursing homes (NH) is a widespread and complex problem. Residents’ ability to share their experiences are impeded, due to a high degree of cognitive problems and frailty, and previous studies are thus mainly based on reports from staff. Therefore, we aimed to give voice to the residents by investigating their relatives’ experiences with elder abuse in NH. Methods Qualitative individual interviews were conducted with 16 relatives of residents with experience of abuse and/or neglect in NH. Content analysis was used to analyse the data. Results Relatives perceived neglect as most pervasive and staff-to-resident psychological abuse as a key problem. Physical abuse was mostly related to resident-to-resident aggression. Relatives perceived elder abuse in NH to be related to low competence among staff, low staffing, poor NH leadership, working cultures characterized by fear and loyalty to employer or co-workers, and a lack of individualized care for the residents. Furthermore, relatives themselves experienced maltreatment from NH, which caused them to suffer stress, anxiety and distrust. Relatives also expressed a need to compensate for lack of care. Conclusions Relatives of NH residents who had experienced abuse reported that neglect of basic care and individual rights was predominant and viewed organizational explanations as most important. Relatives perceive themselves as collaborators in care and are emotionally attached to their family member. Therefore, if relatives experience resident abuse or neglect, it inflicts a feeling of being mistreated themselves, particularly if they are not listened to or their notice of abuse on the part of the resident is ignored or trivialized. Including relatives in a committed partnership with NH in care practices is not only a valuable path to reduce the risk of abuse, but it also leads to a more sustainable healthcare with high standards of quality and safety.
Public aspects of medicine
Dilemmas in caring for older adults in Zhejiang Province, China: a qualitative study
Sha Ma, Jianwei Shi, Lu Li
Abstract Background Owing to the increase in life expectancy and sickliness, caring for older adults has become a major challenge in China, where the traditional care system is disintegrating and community- and home-based care have been introduced to respond to this ‘silver wave’. However, there is limited knowledge of the dilemmas associated with caring for older adults and the acceptability of community- and home-based care for this population. Methods Participants were recruited from Xihu District, Hangzhou, from June to July 2017. In-depth interviews were conducted using semi-structured questionnaires. Audio recording, verbatim transcription, and thematic analysis were conducted. Results A total of 64 older adults from four communities were interviewed. Half of the participants had multiple chronic diseases. The very old individuals and those with severe diseases and in poor financial conditions were observed to be struggling the most. Health status, financial capability, and personality were the main factors affecting the care process. Participants cited the following reasons for staying away from nursing homes: misunderstanding, negative environment, a sense of shame, loneliness, and financial limitations. Community- and home-based cares are popular forms of old-age care; however, some participants exhibited a lack of knowledge about such services. Conclusion A multi-layered old-age care system is urgently needed for older adults in Zhejiang Province. Further, it is important that such a system integrates the care provided through community- and home-based services with that offered by nursing homes. Community- and home-based care for older adults needs to be prioritised, and the quality of care provided in nursing homes should be improved.
Public aspects of medicine
Effect of Clustered Nursing Care on Sleep Behaviors of the Preterm Neonates Admitted to the Neonatal Intensive Care Unit
Marjan Bazregari, Jila Mirlashari, hadi ranjbar
et al.
<strong><em>Background:</em></strong> Premature neonates admitted to the neonatal intensive care unit (NICU) undergo sleep disorder due to various manipulations. The present study aimed to investigate the effect of clustered nursing care on sleep behaviors in premature neonates admitted to NICUs.<br /> <strong><em>Methods:</em></strong> This clinical trial study was conducted on 60 neonates selected through convenience sampling method out of the infants admitted to the NICU. First, in the control group, a constant nurse took care of the neonates in a complete shift. The nurse observed the neonates sleep behaviors every two min for 45 min and recorded them in the questionnaire. The intervention group was investigated one week after the control group. The neonates ‘sleep behaviors were observed and recorded every two min by Prechtl instrument. All the data were analyzed by the Mann-Whitney U test using SPSS software version 16.<br /> <strong><em>Results</em></strong><strong><em>:</em></strong> The mean sleep times in the control group were as follow: quiet sleep 5 min and 86 millisecond, active sleep 21 min and 50 milliseconds, quiet wake 4 min and 6 milliseconds,alertness9 min and 6 milliseconds, and cry1 min and 76 millisecond .On the other hand, in the neonates who received clustered care in the intervention group, the mean timings were as follow: quiet sleep time 19 min and 33 millisecond, active sleep 24 min and 66 millisecond, quiet wake 1 min and 76 millisecond,alertness2 min and 76 millisecond, and cry0.13 min. According to the mentioned times, it could be concluded that the neonates in the test group had a quiet and active sleep (P <0.05).<br /> <strong><em>Conclusion:</em></strong> Findings of this study demonstrate that cluster care can significantly increase the time of quiet and active sleep in the newborns. Based on the result, it is recommended that this kind of care be provided in the NICU program, as well as in the syllabus of students and nursing retraining.
Dutch guideline for preventing nosocomial transmission of highly-resistant micro-organisms (HRMO) in long-term care facilities (LTCFs)
Andrea Eikelenboom-Boskamp, Jobje Haaijman, Maria Bos
et al.
Abstract In 2012, the Dutch Working Party for Infection Control (WIP) issued the first Guideline for prevention of transmission of highly-resistant micro-organisms (HRMO) in Hospitals. The next step was to focus on long-term care facilities (LTCFs) both for nursing homes as for small-scale living facilities with nursing home care. These facilities providing care for residents with functional disabilities, chronical illnesses and cognitive disorders, such as dementia. The objective was to adapt the Guideline for prevention of transmission of HRMO in hospitals to LTCFs with a strong accent on living conditions and social interactions. Residents of LTCFs may be carriers of HRMO over a long period of time and most of the residents of the LTCF stay for extended periods of time. To respect individual living circumstances and to prevent unnecessary limitations in the social life of the residents due to the use of isolation measures, the WIP has chosen to describe infection control precautions per individual micro-organism instead of a ‘one size fits all’ method. The term “isolation” was therefore replaced by the term “additional” precautions. This guideline describes the screening policies for residents in LTCFs, definition and detection of HRMO carriage, standard and additional infection control precautions for HRMO positive residents, documentation and communication of HRMO carriage and discontinuation of additional infection control precautions. It also describes contact tracing of HRMO, environmental control/investigation, surveillance of HRMO and what is important when there is an outbreak.
Infectious and parasitic diseases
The Effect of Education Based on Health Belief Model on Preventive Behaviors Towards Cardiovascular Disease
Nahid Mohammadi, Nasrin Soltani, Roya Amini
et al.
Introduction: Cardiovascular diseases are associated with individual behaviors in childhood, adolescence and youth. This article aimed to study the effect of education based on HBM on the prevention of heart disease in female students.
Methods:This pre and post-test semi-experimental study which has two groups was conducted on 126 girls of high schools in 2017. A randomized cluster sampling method and relative randomize method were used in the first and second stages respectively. At first both groups completed a questionnaire and then instructions were given to intervention group in three sessions (1 hour) on the basis of HBM. Two months later, data was collected via questionnaires in two groups again. Statistical analysis of the data was performed by SPSS software, using independent and paired t-test and Chi-square test.
Results: The two groups were similar in terms of demographic characteristics and knowledge and constructs of the health belief model at the beginning of the study and there was no significant difference in analysis (P>0.05). After intervention, the mean scores of knowledge and model constructs, sensitivity, benefits, self-efficacy and behavior had significantly increased in the test group (P<0.05). The perceived barriers were significantly reduced in the test group (P<0.05). There were no significant differences between the perceived severity and the areas of practice according to the t-test results in both the experimental and control groups before and after the training (P>0.05).
Conclusion: According to the results, education based on health belief model increases knowledge and practice in girls; so it is recommended to use this model in programs for the prevention.
A Story of Emergent Leadership: Lived Experiences of Nurses in a Critical Access Hospital
Judith Maria Paré, Polly Petersen, Dayle Boynton Sharp
Purpose: The purpose of this study was to understand the lived experiences of nurses working in a predominantly rural care setting. In order to meet the needs of an aging population with multiple comorbidities, it is essential for leaders to understand the strategies to recruit and retain highly qualified nurses in CAHs settings.
Sample: Nine registered nurses working both full and part time with one to 40 years of experience participated in the interview process that queried their attitudes regarding working in a rural setting.
Findings: Five major themes included self-reliance, social responsibility, empathy, isolation, and emergent leadership.
Conclusions: The findings from this study support the notion that there is not a universal response to the lived experience of nurses working in CAHs. The unique needs of each nurse should be considered to enhance the practice environment and diminish experiences that result in feelings of isolation. Isolation impacted the five themes; if nurses are not able to maintain current knowledge and skills in a supportive environment, their self-reliance is compromised.
Keywords: Rural, Nursing, Self-reliance, Emerging leader
DOI: http://dx.doi.org/10.14574/ojrnhc.v17i2.454
Nursing, Public aspects of medicine
Familiarity, opinions, experiences and knowledge about scalp cooling: a Dutch survey among breast cancer patients and oncological professionals
Mijke Peerbooms, Corina JG van den Hurk, Wim PM Breed
Objective: Scalp cooling (SC) is applied to reduce chemotherapy-induced alopecia (CIA). The aim of this study was to investigate patients′ familiarity and opinions and oncological professionals′ attitude and knowledge about SC in the Netherlands. Methods: Ex breast cancer patients, nurses and medical oncologists (MDs) from SC and non-SC hospitals filled out questionnaires. Results: The majority of MDs and nurses were satisfied with the results of SC, as were SC patients. Over 33% of MDs and nurses perceived their knowledge level insufficient to inform patients about effectiveness, which was over 43% for information about safety. MDs main reason to not apply SC was doubt about effectiveness and safety. Nurses generally offered SC to a minority of eligible patients. Patients were frequently unfamiliar with SC before diagnosis. Seventy percent of SC patients with insufficient results (20/52) reported to mind it very much. With expected success rates of 35% and 50%, respectively, 36% and 54% of patients would use SC again. Conclusion: Room for improvement has been shown for both patients′ familiarity and oncological professionals′ knowledge about SC. Sharing knowledge about results, safety and patients′ experiences will improve patient counseling and SC availability. The results of this survey led to the development of a national standard on CIA and SC.
Neoplasms. Tumors. Oncology. Including cancer and carcinogens, Nursing
Fundamentals of nursing: The art and science of nursing care
Carol Taylor, C. Lillis, P. Lemone
The value of reflective practice for nursing.
C. Johns
Professional Nursing: Concepts and Challenges
K. Chitty
Nursing competence 10 years on: fit for practice and purpose yet?
A. Bradshaw, C. Merriman
Nursing concept analysis in North America: state of the art.
K. Weaver, C. Mitcham
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Sociology, Medicine