DOAJ Open Access 2024

System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways

Gacser Zita Bourke Steven Hosszú Dalma Daniels Susan

Abstrak

The European Haemophilia Consortium (EHC) Think Tank was established as a platform for system change to ensure the healthcare ecosystem remains effective and relevant for people with bleeding disorders and other rare diseases. Operating alongside traditional advocacy initiatives, it comprised a series of thematic workstreams in which multiple stakeholders explored and co-designed potential solutions for specific aspects of the healthcare system. This final report from the workstreams on Access Equity and Future Care Pathways summarises recommendations for system change and the actions needed to achieve critical goals.

Topik & Kata Kunci

Diseases of the blood and blood-forming organs

Penulis (4)

Gacser Zita

Bourke Steven

Hosszú Dalma

Daniels Susan

Format Sitasi

APA MLA BibTeX

Zita, G., Steven, B., Dalma, H., Susan, D. (2024). System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways. https://doi.org/10.2478/jhp-2024-0017

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Informasi Jurnal

Tahun Terbit: 2024
Sumber Database: DOAJ
DOI: 10.2478/jhp-2024-0017
Akses: Open Access ✓